Last night will mark the first time Eliana has had a seizure in over a month. I'm not sure what triggered her seizure. Maybe the excitement of playing with her new doggy ,( that she absolutely loves by the way) perhaps having her grandpa here or maybe she was just tired.
Eliana was playing with the puppy then all of a sudden stopped moving and starting staring off. I was calling her name but nothing , no response or any sign that she could here me. This one lasted a 10 seconds then after she became very emotional and started to cry. Then she told me she didn't feel good. I hope this little episode isn't the first to a cluster of Seizures. Because if you know someone who has seizures at times the seizures come in "clusters".
Once it was time to go to bed she fell right to sleep. However, she had so much trouble sleeping. All night she was waking up, not even crying just up. The light sleeper I am , I felt her get up and I would immediately watch her incase of seizure activity. Thank you Jesus she didn't have any.
I hope and pray she will not have anymore seizures! She has been doing well and she has had such good seizure control.
Keep fighting Baby Girl! You're doing great in the Fight!
We Love you #elianasfight
Friday, October 19, 2012
Tuesday, October 9, 2012
Custom Epilepsy Awareness Pin giveaway
To be entered : follow my daughters blog http://elianasjourneywithepilepsy.blogspot.com/ and take a pic wearing purple , make a sign or anything you want to show your support for Epilepsy and tag it #elianafight on twitter and/or instagram . Become a loyal blog follower and you will get 2 entries on the next contest ! I will post the winner at #elianasfight. Please contact me You have 2 days to respond or I will choose someone else. #elianasfight #epilepsy #foracure #needacure #supportepilepsy #epilepsyawareness #theprincessneedsacure #purpleribbon
Epilepsy Awareness bows and pins
Epilepsy Awareness Month is in November , and what better way to show your support for people who suffer from Epilepsy by wearing a Custom made pin or a fun hair accessory ?
I'm currently making custom bottle cap images for Epilepsy Awareness Month . I can incorporate any symbol, any type of phrase or anything your heart desires! The bottle cap will have an Epilepsy awareness ribbon and/or a variation of the phrase Epilepsy Awareness. And on some of the bottle cap images there will a Swarovski Crystal in the image.
I think this would be great foryour place of employment ,church, schools, friends , family and lists go on and on!
I can also incorporate the bottle cap in a hair now for the little Princess in your life.
The Pins will be ONLY $1.00 each and I sell these in batches of 10 (all the same image.) Only $2.00 shipping #elianasfight
As a supporter and a Mother of a Child who suffers from Epilepsy I would like to announce I'm donating 100% of the Proceeds to the Epilepsy Foundation!!!
So help Us in the fight and in the hopes of a CURE! #elianasfight
My daughters story is on You Tube
Eliana's Journey With Epilepsy
ABOUT FACTS:
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. Seizures happen when clusters of nerve cells in the brain signal abnormally, which may briefly alter a person's consciousness, movements or actions.
FACTS:
Epilepsy kills more people annually than breast cancer.
Epilepsy affects over 3 million Americans of all ages – more than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined. Almost 500 new cases of epilepsy are diagnosed every day in the United States. Epilepsy affects 50,000,000 people worldwide.
Anyone can develop epilepsy at any age
The mortality rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is twenty-four times greater.
It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents
Resource: http://epilepsyfoundation.ning.com/
I'm currently making custom bottle cap images for Epilepsy Awareness Month . I can incorporate any symbol, any type of phrase or anything your heart desires! The bottle cap will have an Epilepsy awareness ribbon and/or a variation of the phrase Epilepsy Awareness. And on some of the bottle cap images there will a Swarovski Crystal in the image.
I think this would be great foryour place of employment ,church, schools, friends , family and lists go on and on!
I can also incorporate the bottle cap in a hair now for the little Princess in your life.
The Pins will be ONLY $1.00 each and I sell these in batches of 10 (all the same image.) Only $2.00 shipping #elianasfight
As a supporter and a Mother of a Child who suffers from Epilepsy I would like to announce I'm donating 100% of the Proceeds to the Epilepsy Foundation!!!
So help Us in the fight and in the hopes of a CURE! #elianasfight
My daughters story is on You Tube
Eliana's Journey With Epilepsy
ABOUT FACTS:
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. Seizures happen when clusters of nerve cells in the brain signal abnormally, which may briefly alter a person's consciousness, movements or actions.
FACTS:
Epilepsy kills more people annually than breast cancer.
Epilepsy affects over 3 million Americans of all ages – more than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined. Almost 500 new cases of epilepsy are diagnosed every day in the United States. Epilepsy affects 50,000,000 people worldwide.
Anyone can develop epilepsy at any age
The mortality rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is twenty-four times greater.
It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents
Resource: http://epilepsyfoundation.ning.com/
Saturday, October 6, 2012
AMAZING fundraising for Epilepsy Awareness Month
Epilepsy Awareness Month is in November and we're in full swing to make this the most successful year for our fundraising. And to be honest we are off to GREAT START!
The other day I walked into our local Pizza Hut (we are Friday night regulars) to see if they wanted to participate in a fundraiser for Epilepsy Awareness. It just so happens the " Head Hancho" of Pizza Hut was there, So I pitched him the idea of having our School Family Night at the NEW Pizza Hut Dine-In and having a fundraiser for Epilepsy Awareness Month. As I started to explain my daughters story and how this would help our community and every Party involved he said "I'M IN" "Let's Do This, My brother had Epilepsy and he passed away from it" before I could say another word tears were streaming, I was overjoyed that this was going to turn out and benefit so many people!
After I stopped crying I went to explain how eventually my Husband and I want to raise awareness to military families. We are apart of the Wounded Warrior Project Alumni and would love to combine the two organizations together. I looked at him and He said that he was apart of that organization and that he is in charge of the events for the Wounded Warrior Project. I was so shocked! So my husband , myself and Mr Bill Wiggins are going to get together and have another event at another Pizza Hut with the two organizations. Mr. Wiggins has been so generous to donate 20% of everything made from 5pm-8pm on Tuesday's in NOVEMBER (during family night)
Our dream is coming true, bringing Awareness to people who are at risk of Developing Epilepsy and almost merging these two organizations together. I know GOD had his hand in bringing all of this together for The Epilepsy Foundation, our School, Pizza Hut and Community. And if that wasn't enough, Mr Wiggins wants to have a portrait of our family in the Pizza Hut Dine-in!
I will post pictures and more info later in the week:-)
Pizza Hut Dine-In in Horizon City will open this Week!
Support Epilepsy Awareness
Paint it Purple
Leave words of encouragement
And Tag it #elianasfight
The other day I walked into our local Pizza Hut (we are Friday night regulars) to see if they wanted to participate in a fundraiser for Epilepsy Awareness. It just so happens the " Head Hancho" of Pizza Hut was there, So I pitched him the idea of having our School Family Night at the NEW Pizza Hut Dine-In and having a fundraiser for Epilepsy Awareness Month. As I started to explain my daughters story and how this would help our community and every Party involved he said "I'M IN" "Let's Do This, My brother had Epilepsy and he passed away from it" before I could say another word tears were streaming, I was overjoyed that this was going to turn out and benefit so many people!
After I stopped crying I went to explain how eventually my Husband and I want to raise awareness to military families. We are apart of the Wounded Warrior Project Alumni and would love to combine the two organizations together. I looked at him and He said that he was apart of that organization and that he is in charge of the events for the Wounded Warrior Project. I was so shocked! So my husband , myself and Mr Bill Wiggins are going to get together and have another event at another Pizza Hut with the two organizations. Mr. Wiggins has been so generous to donate 20% of everything made from 5pm-8pm on Tuesday's in NOVEMBER (during family night)
Our dream is coming true, bringing Awareness to people who are at risk of Developing Epilepsy and almost merging these two organizations together. I know GOD had his hand in bringing all of this together for The Epilepsy Foundation, our School, Pizza Hut and Community. And if that wasn't enough, Mr Wiggins wants to have a portrait of our family in the Pizza Hut Dine-in!
I will post pictures and more info later in the week:-)
Pizza Hut Dine-In in Horizon City will open this Week!
Support Epilepsy Awareness
Paint it Purple
Leave words of encouragement
And Tag it #elianasfight
Monday, September 24, 2012
Eliana's Fight
I wanted to share with You a HashTag we made for Eliana.
#elianasfight
We encourage everyone to show your support for Eliana and Epilepsy by Making a sign, wear purple , leave eliana some words of encouragement , make Eliana's name or the Epilepsy awareness ribbon out of what ever you want, share with us how you support or whatever else you want to do to show your support for Eliana and her fight with Epilepsy! Eliana can't wait to see !!
Let's find a Cure until then Eliana fight on baby Girl!!
Share this on Instagram and twitter!!
#elianasfight
God bless !
#elianasfight
We encourage everyone to show your support for Eliana and Epilepsy by Making a sign, wear purple , leave eliana some words of encouragement , make Eliana's name or the Epilepsy awareness ribbon out of what ever you want, share with us how you support or whatever else you want to do to show your support for Eliana and her fight with Epilepsy! Eliana can't wait to see !!
Let's find a Cure until then Eliana fight on baby Girl!!
Share this on Instagram and twitter!!
#elianasfight
God bless !
Friday, September 7, 2012
A Different Eliana...
Throughout the course of her life I've noticed how Epilepsy has effected Eliana.
In the first year of Eliana's life she was progressing as she should. She was walking by 7.5 months talking clearly , cracking jokes and potty trained by one and a half years of age.
Two life threatening seizures later I've
Noticed a HUGE difference In Eliana.
We have notice that she hasn't been talking as much as she used to, she has developed a stutter , she can not seem to retain most information like she is very forgetful or she has delayed reaction to things. She has been evaluated by a therapist earlier this Year and we were told she is delayed in several areas.
SPECIAL EDUCATION
Now in Pre-K these delays are posing challenges for Eliana. I was though her seizures were going to be the issue but in all actuality it's the Seizure aftermath that is problematic. We have recently had and review and evaluation for Special Education Class. Last Friday was our meeting and she qualified for Special Ed. In a way it broke my heart because all I could think is how did she get here? How did our bright Eliana get o this point? Then again , I'm very grateful that she has an opportunity to get the help she needs and she will not fall through the cracks.
During the final meeting with the school district , the vice Principal of the school and Eliana's classroom teacher we found out that Eliana has been having a hard time in her classroom. What I mean by that is that Her teacher has told us she doesn't want to participate. She doesn't want to write, color or even try to play with the play dough! Her teacher also mentioned that she has concerns over Eliana's memory. She said she Eliana seems to forget things almost instantly. Which makes things challenging for Eliana just to keep up with the rest of her classmates. She had recently took a state mandated test and failed it.
School work is another issue. Eliana struggles to hold the pencil and have full control over her writing. For her homework I have to do a lot of hand over hand work because of how much she struggles writing on her own. The memory issue is something the school will have to accommodate . Her therapist (Ana calls her Miss Nay) will start to see her Ana more often to give her the help she needs.
.
Eliana will start a at-home program called Writing without Tears, that her Daddy and myself will Administer to her , she will be in a 30 speech therapy class at school twice a week and the teacher will devise a program for Ana to help remember her tasks and what stations Ana needs to be at.
In addition, I will take Ana to an additional therapy session.
Now all of Eliana's issue have been put in the forefront , and everyone see's what I see, I hope that she will be able to get the assistance she needs and will get. On the path she was on
We Love You Ana. You have came a long way , don't give up ! Mommy and Daddy will always be here for you. You're doing great!
In the first year of Eliana's life she was progressing as she should. She was walking by 7.5 months talking clearly , cracking jokes and potty trained by one and a half years of age.
Two life threatening seizures later I've
Noticed a HUGE difference In Eliana.
We have notice that she hasn't been talking as much as she used to, she has developed a stutter , she can not seem to retain most information like she is very forgetful or she has delayed reaction to things. She has been evaluated by a therapist earlier this Year and we were told she is delayed in several areas.
SPECIAL EDUCATION
Now in Pre-K these delays are posing challenges for Eliana. I was though her seizures were going to be the issue but in all actuality it's the Seizure aftermath that is problematic. We have recently had and review and evaluation for Special Education Class. Last Friday was our meeting and she qualified for Special Ed. In a way it broke my heart because all I could think is how did she get here? How did our bright Eliana get o this point? Then again , I'm very grateful that she has an opportunity to get the help she needs and she will not fall through the cracks.
During the final meeting with the school district , the vice Principal of the school and Eliana's classroom teacher we found out that Eliana has been having a hard time in her classroom. What I mean by that is that Her teacher has told us she doesn't want to participate. She doesn't want to write, color or even try to play with the play dough! Her teacher also mentioned that she has concerns over Eliana's memory. She said she Eliana seems to forget things almost instantly. Which makes things challenging for Eliana just to keep up with the rest of her classmates. She had recently took a state mandated test and failed it.
School work is another issue. Eliana struggles to hold the pencil and have full control over her writing. For her homework I have to do a lot of hand over hand work because of how much she struggles writing on her own. The memory issue is something the school will have to accommodate . Her therapist (Ana calls her Miss Nay) will start to see her Ana more often to give her the help she needs.
.
Eliana will start a at-home program called Writing without Tears, that her Daddy and myself will Administer to her , she will be in a 30 speech therapy class at school twice a week and the teacher will devise a program for Ana to help remember her tasks and what stations Ana needs to be at.
In addition, I will take Ana to an additional therapy session.
Now all of Eliana's issue have been put in the forefront , and everyone see's what I see, I hope that she will be able to get the assistance she needs and will get. On the path she was on
We Love You Ana. You have came a long way , don't give up ! Mommy and Daddy will always be here for you. You're doing great!
Wednesday, September 5, 2012
A little cold...
Ana woke up with a cough the other day which really made my heart sink. I was hoping that this little cough was allergies and just may( fingers crossed) go away. Here we are a couple days later and the cough is still here and it's
Getting little worse. I guess it's that time of year where the colds will come and along with the colds in a Epileptic are seizures! Eliana has had so much seizure control over this past month , I just don't want her to backslide. Her little body is so sensitive She has such life threatening seizure with a simple cold.
"STARING MODE"
Honestly , every time I hear a cough or see a sniff I get so worried and get into "staring mode". Staring mode is where I literally watch her constantly. With her past Status Epilepticus seizures she had no warning of the seizure, no noise,movement, breathing NOTHING and the trigger...a simple COLD and body temp of 99.5
Luckily I was there both times to give her CPR and call the ambulance otherwise she wouldn't be here with us today. With everything she has endured I get so scared to have her out of my sight. What if the teacher doesn't react fast enough and we lose her? What if I fall asleep at night and she has her Status seizure in her sleep. Like I said she doesn't move doesn't make a noise, she doesn't even breathe ... All of these thoughts rush through my mind when something Like a simple cold presents it self. Now that she's in school it's just makes it that much more difficult for me because I have ALWAYS been here with her... Well somethings are just out of our hands and in GOD's hands. That is where I should leave it along with the worrying...
With that in mind, yes ,Mommy is going to be in staring mode until the Princess Is feeling better! Lol!
Hope everyone has a wonderful week .
Prayers for my Princess!
Getting little worse. I guess it's that time of year where the colds will come and along with the colds in a Epileptic are seizures! Eliana has had so much seizure control over this past month , I just don't want her to backslide. Her little body is so sensitive She has such life threatening seizure with a simple cold.
"STARING MODE"
Honestly , every time I hear a cough or see a sniff I get so worried and get into "staring mode". Staring mode is where I literally watch her constantly. With her past Status Epilepticus seizures she had no warning of the seizure, no noise,movement, breathing NOTHING and the trigger...a simple COLD and body temp of 99.5
Luckily I was there both times to give her CPR and call the ambulance otherwise she wouldn't be here with us today. With everything she has endured I get so scared to have her out of my sight. What if the teacher doesn't react fast enough and we lose her? What if I fall asleep at night and she has her Status seizure in her sleep. Like I said she doesn't move doesn't make a noise, she doesn't even breathe ... All of these thoughts rush through my mind when something Like a simple cold presents it self. Now that she's in school it's just makes it that much more difficult for me because I have ALWAYS been here with her... Well somethings are just out of our hands and in GOD's hands. That is where I should leave it along with the worrying...
With that in mind, yes ,Mommy is going to be in staring mode until the Princess Is feeling better! Lol!
Hope everyone has a wonderful week .
Prayers for my Princess!
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