Eliana's Journey With Epilepsy: Early morning "pokey"

Eliana was woken up early to start her day. First thing on the list: nothing to eat by mouth until after 1:00pm 2nd thing on the list get an IV started ( too early in the morning to get a "pokey") Like always Eliana was very brave and compliant. She didn't move and cried a little bit. They got the IV in quickly without a hitch. Soon after the IV kept leaking fluids and blood. Nurses were in the room all morning trying to fix the faulty cap... All 3 of them . Yup, had to change Ana's tubing and caps on her IV three times! Luckily, they didn't have to re-stick her. Several doctors came in throughout the morning explaining what was on the agenda and seeing how Ana did overnight. Which she did wonderful by the way.

THE EPILEPTOLOGIST

Mid morning the Epileptologist and another doctor came in to let me know Ana has done pretty well. There is some spikes on her EEG in her sleep but overall it's looking good so far.

What's the GAME PLAN?
Ok, here is what we know so far, at 1:00pm Eliana will get her PET Scan . They will inject Ana with Radio Active glucose (super cool sugar in other words) they will watch how it travels and breaks down in her brain for 30 minutes and then she will be sedated for the remainder of her PET scan. Then they will remove Eliana's leads that's connected to her head for her EEG and get her ready for her MRI . She will be sedated for the MRI as well. When those procedures are completed she will be reattached to the leads To resume the EEG.
The doctors are in the talks of provoking her seizures by weaning her off her meds. As well as checking into the possibility of something else wrong that could be triggering her seizures , delays and looking into her being a candidate for brain surgery.

UPDATE:
We are in the Neuro Diagnostic Suite
Eliana had done great up to the time where she had to be prepared for the PET SCAN. She held up as long as she could tucking those feelings of unknowing and being frightened down but when push came to shove she broke down. When she was placed on the "stretcher bed" in the PET scan is what triggered her to cry then they administered her anesthesia it burned her . She was screaming for me ( I was next to her holding her hand) and saying she needed me. I felt horrible for her, she's hungry , scared then to fall asleep on that note just broke my heart. She quickly fell asleep, she was awake for less than 30 seconds after the anesthesia was administered to when she fell asleep. The Anesthesiologist wouldn't allow anyone in the room. So I'm now outside waiting on my Princess.

** You're doing great Ana ! Your just so STRONG and BRAVE baby. We're almost done with all of this. ❤