Last night will mark the first time Eliana has had a seizure in over a month. I'm not sure what triggered her seizure. Maybe the excitement of playing with her new doggy ,( that she absolutely loves by the way) perhaps having her grandpa here or maybe she was just tired.
Eliana was playing with the puppy then all of a sudden stopped moving and starting staring off. I was calling her name but nothing , no response or any sign that she could here me. This one lasted a 10 seconds then after she became very emotional and started to cry. Then she told me she didn't feel good. I hope this little episode isn't the first to a cluster of Seizures. Because if you know someone who has seizures at times the seizures come in "clusters".
Once it was time to go to bed she fell right to sleep. However, she had so much trouble sleeping. All night she was waking up, not even crying just up. The light sleeper I am , I felt her get up and I would immediately watch her incase of seizure activity. Thank you Jesus she didn't have any.
I hope and pray she will not have anymore seizures! She has been doing well and she has had such good seizure control.
Keep fighting Baby Girl! You're doing great in the Fight!
We Love you #elianasfight
Friday, October 19, 2012
Tuesday, October 9, 2012
Custom Epilepsy Awareness Pin giveaway
To be entered : follow my daughters blog http://elianasjourneywithepilepsy.blogspot.com/ and take a pic wearing purple , make a sign or anything you want to show your support for Epilepsy and tag it #elianafight on twitter and/or instagram . Become a loyal blog follower and you will get 2 entries on the next contest ! I will post the winner at #elianasfight. Please contact me You have 2 days to respond or I will choose someone else. #elianasfight #epilepsy #foracure #needacure #supportepilepsy #epilepsyawareness #theprincessneedsacure #purpleribbon
Epilepsy Awareness bows and pins
Epilepsy Awareness Month is in November , and what better way to show your support for people who suffer from Epilepsy by wearing a Custom made pin or a fun hair accessory ?
I'm currently making custom bottle cap images for Epilepsy Awareness Month . I can incorporate any symbol, any type of phrase or anything your heart desires! The bottle cap will have an Epilepsy awareness ribbon and/or a variation of the phrase Epilepsy Awareness. And on some of the bottle cap images there will a Swarovski Crystal in the image.
I think this would be great foryour place of employment ,church, schools, friends , family and lists go on and on!
I can also incorporate the bottle cap in a hair now for the little Princess in your life.
The Pins will be ONLY $1.00 each and I sell these in batches of 10 (all the same image.) Only $2.00 shipping #elianasfight
As a supporter and a Mother of a Child who suffers from Epilepsy I would like to announce I'm donating 100% of the Proceeds to the Epilepsy Foundation!!!
So help Us in the fight and in the hopes of a CURE! #elianasfight
My daughters story is on You Tube
Eliana's Journey With Epilepsy
ABOUT FACTS:
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. Seizures happen when clusters of nerve cells in the brain signal abnormally, which may briefly alter a person's consciousness, movements or actions.
FACTS:
Epilepsy kills more people annually than breast cancer.
Epilepsy affects over 3 million Americans of all ages – more than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined. Almost 500 new cases of epilepsy are diagnosed every day in the United States. Epilepsy affects 50,000,000 people worldwide.
Anyone can develop epilepsy at any age
The mortality rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is twenty-four times greater.
It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents
Resource: http://epilepsyfoundation.ning.com/
I'm currently making custom bottle cap images for Epilepsy Awareness Month . I can incorporate any symbol, any type of phrase or anything your heart desires! The bottle cap will have an Epilepsy awareness ribbon and/or a variation of the phrase Epilepsy Awareness. And on some of the bottle cap images there will a Swarovski Crystal in the image.
I think this would be great foryour place of employment ,church, schools, friends , family and lists go on and on!
I can also incorporate the bottle cap in a hair now for the little Princess in your life.
The Pins will be ONLY $1.00 each and I sell these in batches of 10 (all the same image.) Only $2.00 shipping #elianasfight
As a supporter and a Mother of a Child who suffers from Epilepsy I would like to announce I'm donating 100% of the Proceeds to the Epilepsy Foundation!!!
So help Us in the fight and in the hopes of a CURE! #elianasfight
My daughters story is on You Tube
Eliana's Journey With Epilepsy
ABOUT FACTS:
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy. Seizures happen when clusters of nerve cells in the brain signal abnormally, which may briefly alter a person's consciousness, movements or actions.
FACTS:
Epilepsy kills more people annually than breast cancer.
Epilepsy affects over 3 million Americans of all ages – more than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined. Almost 500 new cases of epilepsy are diagnosed every day in the United States. Epilepsy affects 50,000,000 people worldwide.
Anyone can develop epilepsy at any age
The mortality rate among people with epilepsy is two to three times higher than the general population and the risk of sudden death is twenty-four times greater.
It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents
Resource: http://epilepsyfoundation.ning.com/
Saturday, October 6, 2012
AMAZING fundraising for Epilepsy Awareness Month
Epilepsy Awareness Month is in November and we're in full swing to make this the most successful year for our fundraising. And to be honest we are off to GREAT START!
The other day I walked into our local Pizza Hut (we are Friday night regulars) to see if they wanted to participate in a fundraiser for Epilepsy Awareness. It just so happens the " Head Hancho" of Pizza Hut was there, So I pitched him the idea of having our School Family Night at the NEW Pizza Hut Dine-In and having a fundraiser for Epilepsy Awareness Month. As I started to explain my daughters story and how this would help our community and every Party involved he said "I'M IN" "Let's Do This, My brother had Epilepsy and he passed away from it" before I could say another word tears were streaming, I was overjoyed that this was going to turn out and benefit so many people!
After I stopped crying I went to explain how eventually my Husband and I want to raise awareness to military families. We are apart of the Wounded Warrior Project Alumni and would love to combine the two organizations together. I looked at him and He said that he was apart of that organization and that he is in charge of the events for the Wounded Warrior Project. I was so shocked! So my husband , myself and Mr Bill Wiggins are going to get together and have another event at another Pizza Hut with the two organizations. Mr. Wiggins has been so generous to donate 20% of everything made from 5pm-8pm on Tuesday's in NOVEMBER (during family night)
Our dream is coming true, bringing Awareness to people who are at risk of Developing Epilepsy and almost merging these two organizations together. I know GOD had his hand in bringing all of this together for The Epilepsy Foundation, our School, Pizza Hut and Community. And if that wasn't enough, Mr Wiggins wants to have a portrait of our family in the Pizza Hut Dine-in!
I will post pictures and more info later in the week:-)
Pizza Hut Dine-In in Horizon City will open this Week!
Support Epilepsy Awareness
Paint it Purple
Leave words of encouragement
And Tag it #elianasfight
The other day I walked into our local Pizza Hut (we are Friday night regulars) to see if they wanted to participate in a fundraiser for Epilepsy Awareness. It just so happens the " Head Hancho" of Pizza Hut was there, So I pitched him the idea of having our School Family Night at the NEW Pizza Hut Dine-In and having a fundraiser for Epilepsy Awareness Month. As I started to explain my daughters story and how this would help our community and every Party involved he said "I'M IN" "Let's Do This, My brother had Epilepsy and he passed away from it" before I could say another word tears were streaming, I was overjoyed that this was going to turn out and benefit so many people!
After I stopped crying I went to explain how eventually my Husband and I want to raise awareness to military families. We are apart of the Wounded Warrior Project Alumni and would love to combine the two organizations together. I looked at him and He said that he was apart of that organization and that he is in charge of the events for the Wounded Warrior Project. I was so shocked! So my husband , myself and Mr Bill Wiggins are going to get together and have another event at another Pizza Hut with the two organizations. Mr. Wiggins has been so generous to donate 20% of everything made from 5pm-8pm on Tuesday's in NOVEMBER (during family night)
Our dream is coming true, bringing Awareness to people who are at risk of Developing Epilepsy and almost merging these two organizations together. I know GOD had his hand in bringing all of this together for The Epilepsy Foundation, our School, Pizza Hut and Community. And if that wasn't enough, Mr Wiggins wants to have a portrait of our family in the Pizza Hut Dine-in!
I will post pictures and more info later in the week:-)
Pizza Hut Dine-In in Horizon City will open this Week!
Support Epilepsy Awareness
Paint it Purple
Leave words of encouragement
And Tag it #elianasfight
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